Do you have Endometriosis?

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Permalink Reply by Jennee on May 10, 2008 at 10:39pm

I had all of these symptoms and it still took my docs about 2 yrs to decide to do a lap. Then when i had a lap done, the doc had the nerve to say to me you only had 2 spots of 1mm each of endo, you shouldnt have that much pain.... Ok then why did i read that it doesnt matter the amount you have, you could still have tremendous pain.

My body would actually have contractions during my period. My legs would hurt like h***. I get kidney pain still with pms, and clots. HUGE clots.

Permalink Reply by Rachael on May 10, 2008 at 11:52pm

yeah that sounds like me...I've been having period problems for over 4 years and they kept telling me I didn't have Endo or PCOS, and now I find out I have both! I never knew that I wasn't normal until now. I honestly thought that the pain was just life, that everyone hurts when they have a period, and (TMI) that everyone got diarrhea when they had their period and randomly all month long. I've always had pains and hurts and issues, but I just thought it was normal, so when I read the side effects I always said "well I can't have that, I don't have severe pain).

Now that I'm diagnosed I've been talking more, about these dirty nasty things that no one talks about and I'm realizing that all these years I was having all these not normal issues and never even knew it! I wish people would talk more about things...awareness needs to be spread to everyone!

Permalink Reply by Jennee on May 11, 2008 at 4:21am

yep me too;) i thought pain was normal. or at least i thought it was normal bc it "happened more than 3 months in a row".
I thought I had endo for 7 yrs but only really fought with the doc to check for it for the past 2 yrs.

Being on the pill was a blessing- as far as endo goes. but it made me suicidal. and you cant get pregnant on the pill (usually). So i quit it.

I also have other diseases (2) and a fw days before my period and day 1 of my period, NONE of my meds would work so not only was i suffering from pain and sickness, but also side effects from my pills.. ugh... im so glad its gone. for now.

i was at the point were i was saying just give me a hyster. but i couldnt do it bc i want kids so bad and if i had a hyster by my own choice it would be like signing the death papers on ever having kids. if i had already had 1 child i would get a hyster. just to be over the endo. my mother has adenomyosis (or had...)

Permalink Reply by Rachael on May 15, 2008 at 12:47pm

yeah I was on BCP off and on and I felt so much better when I was on the pills, but yeah it's hard to get pregnant when you're on the pill, lol.

My friend got a hyster to try to stop it cause her's was so bad and she STILL had endo problems after getting it done. She already had 2 kids, so she thought it'd be worth it, but now she has no chance of more kids and all the same problems. I keep warning my DH that I might have to get a hyster eventually and he just laughs and tells me "don't worry about things in the future." Sometimes I just want him to shut up, listen, and hold me! lol.

Permalink Reply by Louise on June 2, 2008 at 3:15pm

Hey all, just received an email inviting me to this site, nice to see a discussion board for endo. I'm 22 and I was diagnosed at 18 although I have been suffering from symptoms from the age of 13. I have had 5 laps now and luckily have had a little break from the pain for a fewe months now following the latest one (*fingers crossed*).
It's nice to see women getting together to talk about it, I feel there needs to be more awareness of endo, especially in young girls

Permalink Reply by Rachael on June 8, 2008 at 1:03pm

Thanks for sharing your story! Wow 5 laps in 4 years? I'm really hoping mine isn't going to come to that but everyday I'm thinking it will.

I agree about the awareness I tell anyone that will listen about it :D